Thank you for taking time to learn more about Abby. There are many things I can tell you about her, but I can sum her up with one word...PIG. She is a Pretty Incredible Girl. As, I tell you a little about her, I bet you will agree.
I knew from an ultrasound that Abby would be born with dwarfism. It was definitely a shock. I knew little to nothing about dwarfism. As I would soon find out, I would learn a lot about that and so much more.
When Abby was born a diagnosis of what type of dwarfism could not be made. She was too young, so we returned to the hospital a year later to find out her type of dwarfism. This is helpful because each type has its own traits and medical issues. Her x-rays and records were sent to Cedars Sinai in Los Angeles, CA. It took 9 long months for the results to come back. Her diagnosis was Opsismodysplasia, a life threatening form of dwarfism. She was almost 2 years old and we were told the oldest child lived to 5 years. Unhappy with that information, we dug deeper and found out that a research center in France had record of a 15 year old child with opsismodyplasia.
Each birthday has been a milestone. Each birthday has been a BLESSING! We know of only 2 other children living with Opsismodysplasia. One is 17 years old in Alabama and one is 5 years old in Japan. So, she is 1 of 3 in the world.
The following year, when Abby was 3 years old, she endured a long hospitalization. This was when the reality that her condition was life threatening, really hit home with us. Not that we were in that much denial, but that we had enormous hope.
Life changed again...
Abby was required to be on oxygen 24/7 and started driving a powerchair. She also got a wish granted by the Make-A-Wish foundation. Her wish was to meet "The Wiggles" We are so fond of this organization and have held fundraiser's to support them. Abby loves giving back to Make-A-Wish. (If you want to give to something that makes a difference, Make-A-Wish is it)
About a month after Abby turned 8 years old, she caught the H-flu. She was sedated for almost 6 weeks and ended up with a trach. We were told in May of 2008 that Abby would probably on live 6 months to a year. This was hard to hear, but we decided not to dwell on that. Abby came home on June 12, 2008 and she got stronger and stronger. I am happy to say that the doctors were wrong. She will be 10 years old in March and what a celebration that will be!
She is like most girls her age. She loves all things Disney, especially Jonas!
So, I hope that after reading this you will agree she is a Pretty Incredible Girl. Where did that come from? She loves pigs and when she was in the hospital, a friend came up with the acronym for pig.
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.